After Alex appeared on The One Show earlier this month many of you offered your support, asked about his story, and discussed the impact of his challenge on the public perception of Parkinson's.
So Alex has written a guest blog for us, to talk about how he sees himself raising awareness of the condition:
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| Alex in training |
"Parkinson's and its symptoms are individual to every person with the condition - your own personal designer disease. I was diagnosed 4 years ago and, currently, incredibly lucky enough to be able to continue the exercise regime I did before my diagnosis.
"I believe this exercise programme helps slow progress of Parkinson's on my body - although this is from my own personal experience and I'm not saying it as a recommendation or advice to anyone else.
"What is clear to me is that the effects of Parkinson's - such as tremor, dystonia, fatigue, and rigidity - are progressing nonetheless. As time goes by the less and less I will be able to achieve and do.
"So the challenges I put myself through are the most succinct way I can think of to raise awareness of Parkinson's, to show people the effects of the condition, and the need for a cure.
"Don't get me wrong - I am positive about the future and hopeful about the research undertaken over the last couple of years. It has driven and continues to unlock new avenues of discovery, which inextricably will lead to better lives for us all.
"So if my challenge raises funds to further this research and keeps me moving, then that's good enough for me."
Visit Alex's website to find out more about his challenge.
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2 comments:
I was diagnosed 15 years ago, and I am aware that the Parkinsons is progressing. I to believe that an exercise programme has helped slow the PD effects on my body. By doing karate classes, attending PD exercise groups, and most important, training at home, I manage to keep active, and did a 10K mens health survival of the fittest course this month. I knew i wouldnt win, but finished the course - 1:56 - I feel like a light weight in with a super heavy, and every day is a new round, but: with a nod to M Ali's poem: I sting like a butterfly, float like a bee, i will keep on moving till the PD KO's me.
Phil Webster
18 hours ago
I'm considering doing a fund raising live performance with my guitar next year, singing song after song with only a maximum 20 second break between songs.My intention is to sing 100 songs which would be circa 5 and a half hours, and pop nthe proceeds into the pockets of Parkinson's UK and if I do the 100, I'll sing "imagine" by Lennon off the top balcony of Wainhouse Tower in Halifax! AMPLIFiED! Get Ready! click like if you like.... — at Somewhere in Bradford
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We shall overcome
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