Working in a press office you often expect for
unexpected things to happen. The news agenda sets your working hours. When the
phone rings at 5.30pm with an urgent enquiry you have to respond immediately
because the media can’t and simply won’t wait.
Raising awareness and bringing attention to
Parkinson’s as a condition to promote understanding for those affected is an
ongoing challenge.
Someone well-known like Bob being diagnosed with
Parkinson’s will of course be devastating for Bob and his family. But it also
enables the condition to be brought into the light and to be talked about and
explained.
Since the surprise announcement, our staff and people
with Parkinson’s have been out and about in the media talking about the
condition and what it means when someone is diagnosed.
Every national newspaper carried some information
about Parkinson’s including the Daily Mail and Daily Express. As well as this fantastic coverage, our Chief Executive,
Steve Ford, spoke to ITV’s Daybreak to give further information about the
condition.
These have included BBC Radio London, LBC, BBC Radio Suffolk and BBC Radio Merseyside – and the requests keep coming in.
Jane Hill at our 2011 Christmas concert |
Our Director of Research Kieran Breen has also spoken
to the Mail on Sunday the future of research into Parkinson’s, so look out for
that one due out on Sunday too.
We hope this will mean more people will get the information
and support they need from our charity. We’re already seeing this happening.
Since the announcement, our website has been inundated
with visits to the site – 7,622 on Wednesday and 6,727 on Thursday. The second and third highest number of visits to
the website ever in a single day - only behind to the launch of Parkinson’s Awareness Week
earlier this year.
Bob’s announcement has been an important catalyst to
get people to finally start talking about Parkinson’s.
Once the media polish fades, we hope that the lasting
legacy of his experience will be one of helping to create better understanding
and awareness of the condition – something we so desperately need.
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