The right care for Parkinson's

You might have noticed media coverage in the past week on the heated political debate over social care reform, which includes the possibility of free personal care at home.

Parkinson's is often seen as mainly a health issue. But good social care for Parkinson's is vital too, and it's also a huge part of the work we do.

We work both in coalition with other charities - like the Prescription Charges Coalition for health issues - and on our own on topics specific to Parkinson's.

We were one of the signatories of a letter to the editor of the Times, and carer Denise was happy to share her story of caring for her husband Pete in the newspaper as well.

Pete was diagnosed with Parkinson's about 12 years ago, and now needs extensive care. They've had a daily visitor from social services to help wash, dress and shave Pete, which Denise says is a godsend.

Denise and Pete would be eligible for the free personal care at home, but even so Denise says getting respite care would be an issue.

We have responded to the Government consultation on the Free Personal Care at Home Bill, and we will continue to campaign for the best care for Parkinson's - both in health and social care.

Steve Ford is Chief Executive at the Parkinson's Disease Society